{"id":98,"date":"2019-03-13T22:25:40","date_gmt":"2019-03-13T21:25:40","guid":{"rendered":"http:\/\/www.champ1.fr\/?page_id=98"},"modified":"2025-06-16T10:32:16","modified_gmt":"2025-06-16T08:32:16","slug":"actualites","status":"publish","type":"page","link":"https:\/\/www.champ1.fr\/","title":{"rendered":"Actualit\u00e9s"},"content":{"rendered":"

Actualit\u00e9s<\/h3>\n

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La COURSE DES HEROS est une course ouverte \u00e0 tous organis\u00e9e au Domaine national de Saint Cloud le dimanche 15 juin 2025 (\u00e0 pied ou en course, 2 ou 5 km) mais aussi une course aux fonds pour l\u2019association de son choix.<\/p>\n

L\u2019association CHAMP1FRANCE participe \u00e0 l\u2019\u00e9dition 2025 !<\/p>\n

Comment participer et nous soutenir ?<\/b><\/p>\n

Etape 1 : Inscription dans l\u2019\u00e9quipe de l\u2019association CHAMP1 FRANCE, pour 16\u20ac en individuel (ou 32\u20ac en \u00e9quipe) ici : Inscription | Course des H\u00e9ros Paris 2025 (Dimanche) | Registration by Alvarum
<\/a><\/i>Etape 2 : Collecte des fonds aupr\u00e8s de votre r\u00e9seau et vos amis pour atteindre les 250 euros de don qui valideront votre inscription \u00e0 la course. Vous recevrez toutes les infos pour vous aider \u00e0 atteindre cette somme une fois inscrit.
Etape 3 : Le dimanche 15 juin, rejoignez-nous au Parc de Saint Cloud pour courir ou marcher ensemble et faire connaitre la maladie g\u00e9n\u00e9tique et l\u2019association. D\u00e9guisements bienvenus !<\/b>
Etape 4 : le 11 juin \u00e0 12h, la collecte se termine et les fonds collect\u00e9s par l\u2019\u00e9quipe CHAMP1 FRANCE sont revers\u00e9s \u00e0 l\u2019association. <\/p>\n

<\/p>\n

OCTOBRE 2025<\/b> CHAMP1 European Conference (2\u00e8me<\/sup> \u00e9dition – A VENIR)<\/p>\n

15 JUIN 2025<\/b> La course des h\u00e9ros \u00e0 PARIS !!!<\/p>\n

OCTOBRE 2024 <\/strong>Scientific & Family Engagement Conference 2024 ( Orlando, Etats-Unis)<\/p>\n

<\/p>\n

On y \u00e9tait ! Pour ceux qui n\u2019ont pas pu se d\u00e9placer, retrouver les pr\u00e9sentations<\/a>.<\/b><\/p>\n

<\/p>\n

JUILLET 2023 <\/strong>CHAMP1 European Conference 
1\u00e8res rencontres des familles europ\u00e9ennes touch\u00e9es par la mutation (Verone, Italie). On y \u00e9tait !<\/p>\n

\"\"<\/p>\n

L’association CHAMP1 FRANCE rejoint les associations partenaires des fili\u00e8res de sant\u00e9 maladies rares AnDDi-Rares et D\u00e9fiscience<\/p>\n

 <\/p>\n

2021<\/strong><\/p>\n

L’association CHAMP1 FRANCE est reconnue organisme d’int\u00e9r\u00eat g\u00e9n\u00e9ral<\/p>\n

JUILLET 2019<\/strong><\/p>\n

L’association CHAMP1 FRANCE rejoint les associations partenaires des fili\u00e8res de sant\u00e9 maladies rares AnDDi-Rares et D\u00e9fiscience
AnDDi-Rares \u00e9tant d\u00e9di\u00e9e aux Anomalies du D\u00e9veloppement avec ou sans D\u00e9ficience Intellectuelle de causes Rares.
D\u00e9fiscience \u00e9tant d\u00e9di\u00e9e aux maladies rares du d\u00e9veloppement c\u00e9r\u00e9bral et d\u00e9ficience intellectuelle       <\/p>\n

  \"\"                   \"\"<\/p>\n

JUIN 201<\/strong>9<\/strong><\/p>\n

\"\"<\/h3>\n

La 1\u00e8re rencontre de familles du monde entier touch\u00e9es par des modifications du g\u00e8ne CHAMP1 a eu lieu en Floride fin juin 2019.
Nos pr\u00e9sidente et vice-pr\u00e9sidente y ont assist\u00e9.<\/p>\n

AVRIL 2019<\/strong>
Depuis le 24 avril 2019, l\u2019association est membre de l\u2019Alliance Maladies Rares<\/b>, un des principaux soutiens des associations de maladies rares en France.<\/p>\n

JANVIER 2019<\/b>
Cr\u00e9ation de l’association CHAMP1 FRANCE<\/p>\n

<\/p>\n

JUILLET 2018 <\/b>
Une biobanque<\/b> des mutations du g\u00e8ne CHAMP1 a \u00e9t\u00e9 initi\u00e9e \u00e0 l\u2019institut Coriell ( Etats-Unis)<\/b> et a permis de mettre \u00e0 disposition
des chercheurs des mod\u00e8les cellulaires (dont des cellules souches pluripotentes).
Une famille fran\u00e7aise<\/b> a contribu\u00e9 \u00e0 cette collection et la plupart des recherches actuelles s\u2019appuient, entres autres, sur les lign\u00e9es
cellulaires qui en sont issues.<\/p>\n","protected":false},"excerpt":{"rendered":"

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\nActualit\u00e9s   La COURSE DES HEROS est une course ouverte \u00e0 tous organis\u00e9e au Domaine national de Saint Cloud le dimanche 15 juin 2025 (\u00e0 pied ou en course, 2 ou 5 km) mais aussi une course aux fonds pour…\n<\/div>\n
Continue reading “Actualit\u00e9s”<\/span>…<\/a><\/div>\n<\/div>\n
Continue reading “Actualit\u00e9s”<\/span>…<\/a><\/div>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-98","page","type-page","status-publish","hentry","entry"],"acf":[],"yoast_head":"\nActualit\u00e9s ·<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.champ1.fr\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Actualit\u00e9s ·\" \/>\n<meta property=\"og:description\" content=\"Actualit\u00e9s   La COURSE DES HEROS est une course ouverte \u00e0 tous organis\u00e9e au Domaine national de Saint Cloud le dimanche 15 juin 2025 (\u00e0 pied ou en course, 2 ou 5 km) mais aussi une course aux fonds pour… Continue 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